Zamplo's role in the clinical study
50% of the participants will use Zamplo, for general symptom management, monitoring medication and supplements, pain management and monitoring. During the study they will be given questionnaires about their satisfaction, how they are using the app to manage their condition, and the medical outcomes from using the app.
Heres how Zamplo will be used by participants:
- Creating Journal entries to track their symptoms, medications/supplements, activities, health data, and notes
- Share their virtual binder with their caregivers
- Graph their health data, symptoms and activities to analyze data and see trends
- Generate Reports to show health care providers
- Create Routines to help remember to track medications, treatments, symptoms, and exercise
What is the Metabolics And Genetics In Calgary Clinic's clinical study
M.A.G.I.C Clinic and Zamplo have partnered up together to bring the ZoeInsights app to clinic patients as part of a clinical study. M.A.G.I.C Clinic is the largest clinic within Alberta that manages Fabry disease.
During the study, M.A.G.I.C Clinic will ask 50% of participants to use the app as they like, creating journal entries whenever they want to, and complete a few questionnaires about their experience.
These participants are compared to the other 50%, who are the "placebo" group who do not use the app. However, once the trial is complete those who were randomized to the control group will receive access to Zamplo.
We are conducting this study with M.A.G.I.C Clinic to see if Zamplo can help patients stay engaged in their healthcare treatment, and see how the app can help Dr. Khan and other physicians treat patients.
For more information about the study and to see whether you are eligible for it click here.
Meet the researcher behind the clinical study
Dr. Khan has a vast background from being a Assistant Professor of Medical Genetics and Paediatrics at the University of Calgary, Alberta Children's Hospital to being a full member of the Alberta Children's Hospital Research Institute.
His research is focused on rare and inherited metabolic and genetic disorders. As a paediatrician and medical geneticist, he specializes in inborn errors of metabolism. His practice is currently 70% clinical and 30% research based. The research he does is focused on interventions in patients that have rare diseases.To learn more about Dr. Khan, his team, and his research, click here.
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